World Hemophilia Day is a global event observed on April 17 every year. It was launched by the World Federation of Hemophilia to educate local and national policymakers about the need for proper treatment and care. The World Federation of Hemophilia (WFH) estimates that over 75% of people living with hemophilia worldwide have not been identified, treated, or taken care of.
In this blog, we discuss the importance of World Hemophilia Day, its awareness, diagnosis, and treatment.
What is hemophilia?
Hemophilia is a rare disease that affects the blood’s ability to clot, leading to continuous bleeding and easy impairment. This condition cannot be treated with technological constraints. In the past, anticoagulants were used to treat this disease. However, the anticoagulant thins the blood and worsens the condition.
The theme of World Hemophilia Day -2024 – “Equitable Access for All: Recognizing All the Bleeding Disorders.”
This international theme suggests treatment for all in the world, where people suffering from the condition of inherited bleeding disorders have access to care and treatment regardless of age and gender.
The World Federation of Hemophilia (WHF) estimates that over 75% of people with hemophilia have not been identified or diagnosed. This day is an excellent opportunity to educate the public about this condition and inform them of the treatment.
Importance of World Hemophilia Day
Hemophilia is an inherent genetic disorder that prevents the body from forming clots. This event is important to raise awareness of this condition and those without access to treatment. Various healthcare organizations and policies provide early diagnosis and hemophilia treatment to address this.
Three reasons to recognize World Hemophilia Day
There are some reasons to commemorate World Hemophilia Day among the general public, including:
Raising awareness
Raising awareness among the public about bleeding disorders and some other illnesses. To address this, various healthcare organizations collaborate with government policies to make the public aware of these bleeding disorders, illness symptoms, and treatment advocacy.
Guiding support
Providing specific guidelines to support the patients that can be transformed and modified according to the patients by various groups from various regions.
Support people with hemophilia.
Creating better diagnostic and healthcare access to untreated hemophilia patients with good healthcare access.
Treatment of Hemophilia
There is no cure for the disease hemophilia for now, as it is a genetic disorder. Controlling the bleeding manages the clotting factor. It is performed by injecting clotting factors into veins. The replacement clotting factor can be made from the donated blood sample.
The other treatments performed for this hemophilia are:
Desmopressin
This is the hormone that can be injected slowly into the veins; it stimulates the clotting factor.
Emicizumab
This drug does not include any clotting factor, but it is given to treat episodes of Hemophilia A.
Clot preventing medications.
This medication is also known as anti-fibrinolytic, which prevents clots from fragmenting.
Fibrin sealants
These are primarily used in dental bleeding conditions. When applied directly to the wounds, they promote clotting and healing.
Physical therapy
It controls the signs and symptoms of internal bleeding near the joints, and severe damage may require surgery.
First aid
Bleeding in small areas can be controlled by using pressure or ice packs. Thus, these are the small tricks that instantly control the bleeding.
Lifestyle and home remedies
By applying some lifestyle changes and home remedies, we can adapt to changes that make us less affected by this condition.
- By doing regular exercise,
- Practicing good dental health
- Avoiding blood thinners
- Avoiding physical injuries
- Getting vaccinated
- Avoiding pain killers
Conclusion
By adopting specific lifestyle changes, including raising awareness, creating collaboration with some public policies, and promoting education regarding the disease condition and its prevalence, we can manage it and its conditions and increase the quality of hemophilic patients.
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Let’s celebrate World Hemophilia Day or any other bleeding disorder with access to diagnosis, treatment, and overall care this month.